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If your child’s condition is found at a pregnancy scan

If the sonographer (the professional doing the scan) finds anything unusual, they should refer you to a doctor within 24 hours and - if it is necessary - to a specialist within 72 hours. These doctors will be able to tell you more about the condition and possible treatments.

If your child’s condition is found at birth

The paediatrician (the doctor specialising in care for children) at the hospital will be able to tell you about your child’s condition and possible treatment. If it’s a rare condition the paediatrician may refer you to a specialist. The paediatrician will be able to answer most of your questions. They will then write a report and send it to your family doctor (GP).

You should be given contact details of someone who can answer any questions that you have after your first discussion with the paediatrician. This could be a meeting with another doctor or specialist at the hospital, your family doctor or a health visitor. A follow-up meeting should also be arranged.

When your child's condition is found

You should always be given:

• written information about your child’s condition
• information about services available to you
• practical and emotional support (eg how to feed your baby if you have difficulty, and the opportunity to talk about your feelings)

You can also ask for a second opinion if you wish.

Social services assessments

When your child’s condition is diagnosed you will be offered a social services assessment, which could lead to extra support at home, financial assistance and more.

• Social services assessments Opens new window

Financial entitlements for parents of a disabled child

There are a variety of benefits available to you when you become a parent, and more so if your child is disabled. Follow the links below to find out what you are entitled to.

• Benefits and entitlements for carers of a disabled child (caring for someone section)

• General benefits and entitlements for parents

Contact a Family

For help and advice, parents of disabled children can call the Contact a Family helpline on 0808 808 3555 (Mon-Fri 10.00 am to 4.00 pm, and Mon 5.30 pm to 7.30 pm), or visit their website.

• Contact a Family website Opens new window

More useful links

• Caring for a disabled child (caring for someone section)